Lewy Body – caregiver prespective

Yesterday, Mom came over for a birthday celebration for Ronin and Breen’s 10th birthday. Robin went to pick her up and she insisted that he bring her canary because whomever is tormenting her (in her thoughts) wanted to kill the bird. Robin told her the bird would be fine but she insisted that if she left it alone in her room, it would be dead when she returned. Robin promised that if the bird died, he would replace it with another and in an instant, she was fine. 

She came over and spent a good part of the evening between delusions and lucidity. It is hard for the family to predict what she is going to say at any moment. I packed some food for her to take back with her but she said that “someone” will throw it in the garbage. I reassured her that no one would and she took it. 

For now, I am able to talk her out of her thoughts in the immediate circumstance but that doesn’t last very long. Sometimes it’s a few minutes; sometimes a few hours but not longer than that. 

I have to take her to her doctor on Tuesday morning for a check-up and she already has a list of complaints to give him – mostly that the staff are not giving her her meds. She is, in fact, getting all of her meds. A few months ago, she accused them of trying to poison her and refused to take any meds. I spoke to the pharmacy and asked for some alternative weekly rather than daily options for some meds e.g. Vitamin D. They offered some weekly versions so it doesn’t feel like mom is taking a handful of meds each day (mostly vitamins but that didn’t matter). 

Hopefully the doctor will be able to convince her that she needs some things. 

As I said in a previous post, each day is a new experience for me in my own understanding of the disease. 

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